Autistic adults have multiple, chronic, and potentially preventable healthcare needs as compared to same-aged adults without ASD, but we know very little about why these differences are occurring and how to improve outcomes.
Our team will prioritize the specific positive health and healthcare outcomes desired by autistic adults, identify potential evidence-based interventions from the perspective of autistic adults, and will involve other stakeholders in identifying interventions to address priority topics.
Our Year 1 meeting in. Milwaukee was a success, with over 30 attendees contributing to the conversation about health and health outcomes for autistic adults.
Stay tuned for our Year 2 meeting in 2018.
This Project is funded by a $250,000 Eugene Washington PCORI Engagement award from the non-profit organization, Patient-Centered Outcomes Research Institute (PCORI), EAIN# 4208 to Augusta University.
The statements presented on this website are solely the responsibility of the author(s) and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee or other participants in PCORnet.
The views presented on this website are solely the responsibility of the author(s) and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee.
Noisy waiting room TVs and lights make waiting a challenge. Solution: Modify the environment to use soft lighting or natural lighting, eliminate blaring TVs, and request patients avoid the use of heavy perfumes.
Calling the office to schedule a visit is long, and speaking with your receptionist is sometimes difficult. Solution: Create a way to schedule an appointment online and send me a reminder to my phone or email.
I need time to understand choices. Provide choices or recommendations in writing to review with me.
Unfamiliar touch does not feel good. Prior to my visit, give me a video and/or a schedule of what the exam will include.